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Over the last several years I've been dealing with various stages of disability thanks to ALS. My goal is to share solutions and review various products/tools/devices that I have found particularly helpful.
Showing posts with label driving. Show all posts
Showing posts with label driving. Show all posts

Monday, 8 April 2013

A Little More Humor…

Imperial versus Metric…

Every two weeks I get some help to come to the house to help to prepare some meals in this usually works out okay. But once in a while there are some things that just don't seem to be understood… While making a particularly good ratatouille, here's a sample of the conversation I had the other day:

Me: "we need to slice all the vegetables to be about 3 mm thick."

Helper: places the knife on the vegetable and shows me where she thinks to cut, which is about a centimeter. Asking "like this?"

Me: "no, recipe calls for about 3 mm that's about a centimeter"

Helper: "I don't know what a centimeters…"

Me: thinking to myself, okay she must know the Imperial system. "Recipe actually specifies 1/16 of an inch" (okay, I know that's about half the size of 3 mm…)

Helper: "oh, like this then?" She places the knife on the vegetable ready to cut about a quarter of an inch thick.

Me: "no, the recipe says 1/16 of an inch"

Helper: she repositions the knife again, this time to about half an inch. "How about this?"

Me:… Okay, she apparently doesn't know the Imperial system either…
/FacePalm


Battling with the Car Seat…

Every weekday, I have a helper come by the house to assist me in getting my son from daycare. I can still drive there and back, but I have difficulty getting him ready and I cannot manage the car seat. I don't know what it is, but there seems to be an ongoing battle with my child's car seat when we pick him up from daycare. Helpers often just don't seem to understand how it works. 

The following is an actual conversation that happened, you can pass your own judgment…

Me: I sit down in the driver seat waiting for my helper to attach my son. I mistakenly assume he knows what he's doing.

Helper: fumbling with the straps for a few minutes he actually says to me "well, I can't figure this out. I'll just hold him in the car seat."

Me: completely dumbfounded I replied "the hell you will. We may only be going a few blocks away, but you will do it up properly"

Monday, 23 July 2012

Hauling Me Around… my Jeep Liberty

For a long time I drove up standard Mazda MX3. I really enjoy driving this car, but back in November it started become too difficult for me to operate. It was very low to the ground, manual transmission and none of the creature comforts such as power windows. Not to mention that living in Montréal one also has to contend with a fair bit of snow in the winter.

So I sold this car and bought in 2004 Jeep liberty Rocky Mountain edition. The logic in choosing a Jeep was because it had an elevated suspension and four-wheel drive so I wouldn't have to dig it out in the winter. Ideally, put it in four-wheel drive and go.

I'm really pleased with the purchase of the Jeep, meets my needs very well. I find it much easier to get in and out of, and the interior has a number of features which are surprisingly adapted for my needs. Simple things like the shape of the inside door handle (it's a big ring) and how much easier it is to operate things like the temperature controls. I also really lucked out in finding the Rocky Mountain edition, it has all the additional features. Power locks, power windows, automatic transmission, air conditioning etc. As an added bonus the previous owner even installed an alarm system with a remote starter… This is really great!

The other reason that it was time to make the change, was that if I needed to make modifications to my vehicle my rehabilitation facility will only make modifications to one with an automatic transmission... and unfortunately, I'm to the point where I need to start making modifications…

Over the last month or so it started to become very difficult for me to put the Jeep in gear from Park. The shifter has a button on it that needs to be raised to unlock it from the park position to go to reverse or drive. I've had some changes in my hands which makes lifting this button very difficult, in short my fingers just slip off the button.

We are presently waiting for the request for modification to go through, however in the meantime I still need to drive to make my appointment setting generally get from point A to point B. So as a temporary solution my father came up with this. Using a latch from the gate, a zap strap and a couple rubber bands we've managed to extend a lever from the shifter button which makes it very easy for me.

The idea is that the zap strap secures the latch and provides the pivot point, the rubber bands not only help keep it in place to provide an additional tension to help me lift the button and return the latch to its proper position.

Now there are just a few issues with this, mostly because it is a temporary solution. The first is that sometimes the latch needs to be repositioned. After seeing a week or so of use, it sometimes wiggles a little bit out of position. As long as it doesn't pop out of the zap strap, this is no big deal. The second is that the rubber bands sometimes help maintain just a little too much tension on lifting the button. This means that when the vehicle is put in Park, the key is not released from the ignition. I simply have to remember to push the lead back down a bit… Again no big deal.


A note on driving:

The disability that comes with ALS can very much impair your ability to operate a motor vehicle and how quickly this comes on is different for everyone. Please remember, you may have been driving for years and are very experienced, but it is a privilege and not a right. If you are unsafe behind the wheel, please do what's right.

I exercise a high degree of caution while driving and have already modified not only my driving habits but destinations. I choose to no longer drive on the highway nor for long distances as I feel if I were to do so this would pose a safety hazard not only for myself but others. Also, the instant I begin to feel unsafe behind the wheel will also be the day I willingly give up my driving license. 

I strongly encourage you to exercise the same degree of discretion.